Patient & Caregiver Virtual Program
Thank you to our sponsor:
Tuesday, October 27
Registration is free!
The Community Liver Alliance, with their dedication to making the lives of those suffering with liver disease, has created a new program: “PBC Update”. Developed in conjunction with PBC patients, this educational program will include up-to-date information about PBC treatments, developments, clinical trials, transplantation, nutrition, Medicaid/Medicare information, resources, support, and more. The goal of PBC Update is to educate, connect, and support patients, caregivers, and providers in an open, informative setting.
PBC, a progressive chronic liver disease, is caused by a buildup of bile within the liver that results in damage to the small bile ducts that drain bile from the liver. Over time, this pressure builds up and destroys the bile ducts leading to liver cell damage. As the disease progresses, and liver cells die, cirrhosis and liver failure can occur.
The goal of PBC Update is to educate and connect patients, caregivers, and providers in a warm, informative setting. With social and physical distancing restrictions, the CLA is dedicated to connecting the PBC community with technology. We will be hosting virtual meetings and corresponding via email and social media!
Program Manager, Kelli Komondor, will work to find what patients, caregivers, and providers need in information, resources, and activities. There will be surveys, monthly e-newsletters, resource lists, and virtual events.
Kelli can be contacted at Kelli@CommunityLiverAlliance.org.